This is a list of references that may be of interest to health professionals, those supporting people with physical disabilities and those with a physical disability themselves.
If you think an article reference should be added, please let us know.

Aisen, M. L., Kerkovich, D., Mast, J., Mulroy, S., Wren, T. AL, Kay, R. M., & Rethlefsen, S. A. (2011). Cerebral palsy: clinical care and neurological rehabilitation. The Lancet Neurology, 10(9), 844–852. https://doi.org/10.1016/S1474-4422(11)70176-4

Andersson, C., Grooten, W., Hellsten, M., Kaping, K., & Mattsson, E. (2003). Adults with cerebral palsy: walking ability after progressive strength training. Developmental Medicine & Child Neurology, 45(4), 220–228. https://doi.org/10.1017/S0012162203000446

Andersson, C., & Mattsson, E. (2001). Adults with cerebral palsy: a survey describing problems, needs, and resources, with special emphasis on locomotion. Developmental Medicine and Child Neurology, 43(2), 76. https://doi.org/10.1017/S0012162201

Balandin, S., Hemsley, B., Hanley, L., & Sheppard, J. J. (2009). Understanding mealtime changes for adults with cerebral palsy and the implications for support services. Journal of Intellectual & Developmental Disability, 34(3), 197–206. https://doi.org/10.1080/13668250903074489

Balandin, S., & Morgan, J. (2001). Preparing for the future: aging and alternative and augmentative communication. Augmentative and Alternative Communication, 17(2), 99–108. https://doi.org/10.1080/aac.17.2.99.108

Ballin, L., & Balandin, S. (2007). An exploration of loneliness: Communication and the social networks of older people with cerebral palsy. Journal of Intellectual & Developmental Disability, 32(4), 315–326. https://doi.org/10.1080/13668250701689256

Bania, T., Dodd, K. J., & Taylor, N. (2011). Habitual physical activity can be increased in people with cerebral palsy: a systematic review. Clinical Rehabilitation, 25(4), 303–315. https://doi.org/10.1177/0269215510383062

Barks, L. (2004). Therapeutic Positioning, Wheelchair Seating, and Pulmonary Function of Children with Cerebral Palsy: A Research Synthesis. Rehabilitation Nursing, 29(5), 146–153. https://doi.org/10.1002/j.2048-7940.2004.tb00337.x

Benigni, I., Devos, P., Rofidal, T., & Seguy, D. (2011). The CP-MST, a malnutrition screening tool for institutionalized adult cerebral palsy patients. Clinical Nutrition (Edinburgh, Scotland), 30(6), 769–773. https://doi.org/10.1016/j.clnu.2011.06.008

Benner, J. L., Hilberink, S. R., Veenis, T., Stam, H. J., van der Slot, W. M., & Roebroeck, M. E. (2017). Long-Term Deterioration of Perceived Health and Functioning in Adults With Cerebral Palsy. Archives of Physical Medicine and Rehabilitation, 98(11), 2196–2205.e1. https://doi.org/10.1016/j.apmr.2017.03.013

Bode, C., de Ridder, D. T. D., Kuijer, R. G., & Bensing, J. M. (2007). Effects of an Intervention Promoting Proactive Coping Competencies in Middle and Late Adulthood. The Gerontologist, 47(1), 42–51. https://doi.org/10.1093/geront/47.1.42

Bottos, M., Feliciangeli, A., Sciuto, L., Gericke, C., & Vianello, A. (2001). Functional status of adults with cerebral palsy and implications for treatment of children. Developmental Medicine and Child Neurology, 43(8), 516. https://doi.org/10.1017/S0012162201000950

Bottos, M., & Gericke, C. (2003). Ambulatory capacity in cerebral palsy: prognostic criteria and consequences for intervention. Developmental Medicine & Child Neurology, 45(11), 786–790.https://doi.org/10.1017/S0012162203001452

Dahlseng, M. O., Finbråten, A.-K., Júlíusson, P. B., Skranes, J., Andersen, G., & Vik, T. (2012). Feeding problems, growth and nutritional status in children with cerebral palsy. Acta Paediatrica, 101(1), 92–98. https://doi.org/10.1111/j.1651-2227.2011.02412.x

Damiano, D. L., Dodd, K., & Taylor, N. F. (2002). Should we be testing and training muscle strength in cerebral palsy? Developmental Medicine and Child Neurology, 44(1), 68. https://doi.org/10.1017/S0012162201001682

de Groot, S., van der Woude, L. H. V, Niezen, A., Smit, C. A. J., & Post, M. W. M. (2010). Evaluation of the physical activity scale for individuals with physical disabilities in people with spinal cord injury. Spinal Cord, 48(7), 542–547. https://doi.org/10.1038/sc.2009.178

DONKERVOORT, M., WIEGERINK, D. J. H. G., VAN MEETEREN, J., STAM, H. J., & ROEBROECK, M. E. (2009). Transition to adulthood: validation of the Rotterdam Transition Profile for young adults with cerebral palsy and normal intelligence. Developmental Medicine & Child Neurology, 51(1), 53–62. https://doi.org/10.1111/j.1469-8749.2008.03115.x

Field, B., Scheinberg, A., & Cruickshank, A. (2010). Health care services for adults with cerebral palsy. Australian Family Physician, 39(3), 165–167. Retrieved from https://search.proquest.com/openview/45d09d1d3a44e844781467a46c8b38f0/1?pq-origsite=gscholar&cbl=33668

Friedman, B., Wamsley, B. R., Liebel, D. V., Saad, Z. B., & Eggert, G. M. (2009). Patient Satisfaction, Empowerment, and Health and Disability Status Effects of a Disease Management-Health Promotion Nurse Intervention Among Medicare Beneficiaries With Disabilities. The Gerontologist, 49(6), 778–792. https://doi.org/10.1093/geront/gnp090

FUNG, E. B., SAMSON-FANG, L., STALLINGS, V. A., CONAWAY, M., LIPTAK, G., HENDERSON, R. C., … STEVENSON, R. D. (2002). Feeding Dysfunction is Associated with Poor Growth and Health Status in Children with Cerebral Palsy. Journal of the American Dietetic Association, 102(3), 361–373. https://doi.org/10.1016/S0002-8223(02)90084-2

Furukawa, A., Iwatsuki, H., Nishiyama, M., Nii, E., & Uchida, A. (2001). A Study on the Subjective Well-Being of Adult Patients with Cerebral Palsy. Journal of Physical Therapy Science, 13(1), 31–35. https://doi.org/10.1589/jpts.13.31

Gajdosik, C. G., & Cicirello, N. (2002). Secondary Conditions of the Musculoskeletal System in Adolescents and Adults with Cerebral Palsy. Physical & Occupational Therapy In Pediatrics, 21(4), 49–68. https://doi.org/10.1080/J006v21n04_04

Gerdung, C. A., Tsang, A., Yasseen, A. S., Armstrong, K., McMillan, H. J., & Kovesi, T. (2016). Association Between Chronic Aspiration and Chronic Airway Infection with Pseudomonas aeruginosa and Other Gram-Negative Bacteria in Children with Cerebral Palsy. Lung, 194(2), 307–314. https://doi.org/10.1007/s00408-016-9856-5

GOUGH, M. (2009). Continuous postural management and the prevention of deformity in children with cerebral palsy: an appraisal. Developmental Medicine & Child Neurology, 51(2), 105–110. https://doi.org/10.1111/j.1469-8749.2008.03160.x

HAAK, P., LENSKI, M., HIDECKER, M. J. C., LI, M., & PANETH, N. (2009). Cerebral palsy and aging. Developmental Medicine & Child Neurology, 51, 16–23. https://doi.org/10.1111/j.1469-8749.2009.03428.x

Hahn, J. E. (2012). Minimizing Health Risks Among Older Adults With Intellectual and/or Developmental Disabilities: Clinical Considerations to Promote Quality of Life. Journal of Gerontological Nursing, 38(6), 11–17. https://doi.org/10.3928/00989134-20120510-01

HANNA, S. E., ROSENBAUM, P. L., BARTLETT, D. J., PALISANO, R. J., WALTER, S. D., AVERY, L., & RUSSELL, D. J. (2009). Stability and decline in gross motor function among children and youth with cerebral palsy aged 2 to 21 years. Developmental Medicine & Child Neurology, 51(4), 295–302. https://doi.org/10.1111/j.1469-8749.2008.03196.x

Harada, T., Ebara, S., Anwar, M. M., Okawa, A., Kajiura, I., Hiroshima, K., & Ono, K. (1996). THE CERVICAL SPINE IN ATHETOID CEREBRAL PALSY. The Journal of Bone and Joint Surgery. British Volume, 78–B(4), 613–619. https://doi.org/10.1302/0301-620X.78B4.0780613

Harrison, T. (2006). Health Promotion for Persons With Disabilities: What Does the Literature Reveal? Family and Community Health, 29(1), 12s–19s. Retrieved from https://journals.lww.com/familyandcommunityhealth/Abstract/2006/01001/Health_Promotion_for_Persons_With_Disabilities_.4.aspx

Havercamp, S. M., Scandlin, D., & Roth, M. (2004). Health Disparities among Adults with Developmental Disabilities, Adults with other Disabilities, and Adults Not Reporting Disability in North Carolina. Public Health Reports, 119(4), 418–426. https://doi.org/10.1016/j.phr.2004.05.006

Hemsley, B., Balandin, S., & Togher, L. (2007). Narrative analysis of the hospital experience for older parents of people who cannot speak. Journal of Aging Studies, 21(3), 239–254. https://doi.org/10.1016/J.JAGING.2006.12.001

Hemsley, B., Balandin, S., & Togher, L. (2008). Professionals’ views on the roles and needs of family carers of adults with cerebral palsy and complex communication needs in hospital. Journal of Intellectual & Developmental Disability, 33(2), 127–136. https://doi.org/10.1080/13668250802082898

Horsman, M., Suto, M., Dudgeon, B., & Harris, S. R. (2010). Ageing with cerebral palsy: psychosocial issues. Age and Ageing, 39(3), 294–299. https://doi.org/10.1093/ageing/afq018

Horsman, M., Suto, M., Dudgeon, B., & Harris, S. R. (2010). Growing Older With Cerebral Palsy. Pediatric Physical Therapy, 22(3), 296–303. https://doi.org/10.1097/PEP.0b013e3181eabc0f

Houlihan, C. M., & Stevenson, R. D. (2009). Bone density in cerebral palsy. Physical Medicine and Rehabilitation Clinics of North America, 20(3), 493–508. https://doi.org/10.1016/j.pmr.2009.04.004

Jahnsen, R., Villien, L., Aamodt, G., Stanghelle, J. K., & Holm, I. (2004). Musculoskeletal pain in adults with cerebral palsy compared with the general population. Journal of Rehabilitation Medicine, 36(2), 78–84. https://doi.org/10.1080/16501970310018305

Jahnsen, R., Villien, L., Stanghelle, J. K., & Holm, I. (2003). Fatigue in adults with cerebral palsy in Norway compared with the general population. Developmental Medicine & Child Neurology, 45(5), 296–303. https://doi.org/10.1017/S0012162203000562

Jensen, M. P., Engel, J. M., & Schwartz, L. (2006). Coping with Cerebral Palsy Pain: A Preliminary Longitudinal Study. Pain Medicine, 7(1), 30–37. https://doi.org/10.1111/j.1526-4637.2006.00086.x

Kayes, N. M., Schluter, P. J., McPherson, K. M., Taylor, D., & Kolt, G. S. (2009). The Physical Activity and Disability Survey — Revised (PADS-R): an evaluation of a measure of physical activity in people with chronic neurological conditions. Clinical Rehabilitation, 23(6), 534–543. https://doi.org/10.1177/0269215508101750

KEMBHAVI, G., DARRAH, J., PAYNE, K., & PLESUK, D. (2011). Adults with a diagnosis of cerebral palsy: a mapping review of long-term outcomes. Developmental Medicine & Child Neurology, 53(7), 610–614. https://doi.org/10.1111/j.1469-8749.2011.03914.x

Kemp, B. J. (2005). What the rehabilitation professional and the consumer need to know. Physical Medicine and Rehabilitation Clinics of North America, 16(1), 1–18, vii. https://doi.org/10.1016/j.pmr.2004.06.009

KERR, C., MCDOWELL, B. C., PARKES, J., STEVENSON, M., & COSGROVE, A. P. (2011). Age-related changes in energy efficiency of gait, activity, and participation in children with cerebral palsy. Developmental Medicine & Child Neurology, 53(1), 61–67. https://doi.org/10.1111/j.1469-8749.2010.03795.x

King, W., Levin, R., Schmidt, R., Oestreich, A., & Heubi, J. E. (2003). Prevalence of reduced bone mass in children and adults with spastic quadriplegia. Developmental Medicine & Child Neurology, 45(1), 12–16. https://doi.org/10.1017/S0012162203000033

KOOP, S. E. (2009). Scoliosis in cerebral palsy. Developmental Medicine & Child Neurology, 51, 92–98. https://doi.org/10.1111/j.1469-8749.2009.03461.x

Kratz, A. L., Slavin, M. D., Mulcahey, M. J., Jette, A. M., Tulsky, D. S., & Haley, S. M. (2013). An examination of the PROMIS® pediatric instruments to assess mobility in children with cerebral palsy. Quality of Life Research, 22(10), 2865–2876. https://doi.org/10.1007/s11136-013-0397-6

Kroll, T., & Neri, M. T. (2004). Use of primary prevention services among male adults with cerebral palsy, multiple sclerosis, or spinal cord injury in managed care and fee-for-service. Managed Care Quarterly, 12(3), 6–10. Retrieved from http://www.ncbi.nlm.nih.gov/pubmed/15702560

Liptak, G. S. (2008). Health and well being of adults with cerebral palsy. Current Opinion in Neurology, 21(2), 136–142. https://doi.org/10.1097/WCO.0b013e3282f6a499

Logrippo, S., Ricci, G., Sestili, M., Cespi, M., Ferrara, L., Palmieri, G. F., … Blasi, P. (2017). Oral drug therapy in elderly with dysphagia: between a rock and a hard place! Clinical Interventions in Aging, 12, 241–251. https://doi.org/10.2147/CIA.S121905

Majnemer, A. (2006). Assessment tools for cerebral palsy: new directions. Future Neurology, 1(6), 755–763. https://doi.org/10.2217/14796708.1.6.755

Malinowsky, C., Almkvist, O., Kottorp, A., & Nygård, L. (2010). Ability to manage everyday technology: a comparison of persons with dementia or mild cognitive impairment and older adults without cognitive impairment. Disability and Rehabilitation: Assistive Technology, 5(6), 462–469. https://doi.org/10.3109/17483107.2010.496098

Malone, L. A., & Vogtle, L. K. (2010). Pain and fatigue consistency in adults with cerebral palsy. Disability and Rehabilitation, 32(5), 385–391. https://doi.org/10.3109/09638280903171550

McCormick, A., Brien, M., Plourde, J., Wood, E., Rosenbaum, P., & McLean, J. (2007). Stability of the Gross Motor Function Classification System in adults with cerebral palsy. Developmental Medicine & Child Neurology, 49(4), 265–269. https://doi.org/10.1111/j.1469-8749.2007.00265.x

McCrea, N., O’Donnell, R., & Brown, R. (2013). Outpatient respiratory management of the child with severe neurological impairment. Archives of Disease in Childhood. Education and Practice Edition, 98(3), 84–91. https://doi.org/10.1136/archdischild-2012-302324

McDermott, S., Moran, R., Platt, T., Issac, T., Wood, H., & Dasari, S. (2005). Depression in adults with disabilities, in primary care. Disability and Rehabilitation, 27(3), 117–123. https://doi.org/10.1080/09638280400007380

McDonald, H. L. (2008). Inpatients with cerebral palsy and complex communication needs identified barriers to communicating with nurses. Evidence-Based Nursing, 11(1), 30. https://doi.org/10.1136/ebn.11.1.30

Merrick, H., McConachie, H., Le Couteur, A., Mann, K., Parr, J. R., Pearce, M. S., & Colver, A. (2015). Characteristics of young people with long term conditions close to transfer to adult health services. BMC Health Services Research, 15(1), 435. https://doi.org/10.1186/s12913-015-1095-6

Morgan, J., Blount, D., & Buzio, A. (2002). The experiences of adults with cerebral palsy during periods of hospitalisation. Australian Journal of Advanced Nursing, 19(4), 8–14. Retrieved from https://search.informit.com.au/documentSummary;dn=405814148836493;res=IELHEA

Morgan, P. E., Soh, S.-E., & McGinley, J. L. (2014). Health-related quality of life of ambulant adults with cerebral palsy and its association with falls and mobility decline: a preliminary cross sectional study. Health and Quality of Life Outcomes, 12(1), 132. https://doi.org/10.1186/s12955-014-0132-1

Morgan, P., Pogrebnoy, D., & McDonald, R. (2014). Health service experiences to address mobility decline in ambulant adults ageing with cerebral palsy. Journal of Intellectual & Developmental Disability, 39(3), 282–289. https://doi.org/10.3109/13668250.2014.927841

Morris, M. A., Yorkston, K., & Clayman, M. L. (2014). Improving Communication in the Primary Care Setting: Perspectives of Patients with Speech Disabilities. The Patient - Patient-Centered Outcomes Research, 7(4), 397–401. https://doi.org/10.1007/s40271-014-0067-y

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Murphy, K. P. (2010). The adult with cerebral palsy. The Orthopedic Clinics of North America, 41(4), 595–605. https://doi.org/10.1016/j.ocl.2010.06.007

MURPHY, K. P. (2009). Cerebral palsy lifetime care - four musculoskeletal conditions. Developmental Medicine & Child Neurology, 51, 30–37. https://doi.org/10.1111/j.1469-8749.2009.03431.x

Murphy, K. P., Sobus, K., & Michael Bliss, P. (2009). The adult with cerebral palsy: a provider-consumer perspective. Physical Medicine and Rehabilitation Clinics of North America, 20(3), 509–522. https://doi.org/10.1016/j.pmr.2009.06.009

Ng, S., Dinesh, S., Tay, S., & Lee, E. (2003). Decreased Access to Health Care and Social Isolation among Young Adults with Cerebral Palsy after Leaving School. Journal of Orthopaedic Surgery, 11(1), 80–89. https://doi.org/10.1177/230949900301100116

Noonan, K. J., Jones, J., Pierson, J., Honkamp, N. J., & Leverson, G. (2004). Hip Function In Adults With Severe Cerebral Palsy. The Journal of Bone and Joint Surgery-American Volume, 86(12), 2607–2613. Retrieved from https://insights.ovid.com/bone-joint-surgery/jbjs/2004/12/000/hip-function-adults-severe-cerebral-palsy/4/00004623

O’Brien-Pallas, L.-L., Irvine Doran, D., Murray, M., Cockerill, R., Sidani, S., Laurie-Shaw, B., & Lochhaas-Gerlach, J. (n.d.). Evaluation of a client care delivery model, Part 2: Variability in client outcomes in community home nursing. Nursing Economic$, 20(1), 13–21, 36. Retrieved from http://www.ncbi.nlm.nih.gov/pubmed/11892543

O’Brien, T. D., Noyes, J., Spencer, L. H., Kubis, H.-P., Hastings, R. P., & Whitaker, R. (2016). Systematic review of physical activity and exercise interventions to improve health, fitness and well-being of children and young people who use wheelchairs. BMJ Open Sport & Exercise Medicine, 2(1), e000109. https://doi.org/10.1136/bmjsem-2016-000109

OPHEIM, A., JAHNSEN, R., OLSSON, E., & STANGHELLE, J. K. (2009). Walking function, pain, and fatigue in adults with cerebral palsy: a 7-year follow-up study. Developmental Medicine & Child Neurology, 51(5), 381–388. https://doi.org/10.1111/j.1469-8749.2008.03250.x

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Oskoui, M. (2012). Growing Up With Cerebral Palsy: Contemporary Challenges of Healthcare Transition. The Canadian Journal of Neurological Sciences, 39(1), 23–25. https://doi.org/10.1017/S0317167100012634

Palisano, R. J., Copeland, W. P., & Galuppi, B. E. (2007). Performance of Physical Activities by Adolescents With Cerebral Palsy. Physical Therapy, 87(1), 77–87. https://doi.org/10.2522/ptj.20060089

PALISANO, R. J., HANNA, S. E., ROSENBAUM, P. L., & TIEMAN, B. (2010). Probability of walking, wheeled mobility, and assisted mobility in children and adolescents with cerebral palsy. Developmental Medicine & Child Neurology, 52(1), 66–71. https://doi.org/10.1111/j.1469-8749.2009.03454.x

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Peterson, M. D., Gordon, P. M., & Hurvitz, E. A. (2013). Chronic disease risk among adults with cerebral palsy: the role of premature sarcopoenia, obesity and sedentary behaviour. Obesity Reviews, 14(2), 171–182. https://doi.org/10.1111/j.1467-789X.2012.01052.x

Peterson, M. D., Gordon, P. M., Hurvitz, E. A., & Burant, C. F. (2012). Secondary muscle pathology and metabolic dysregulation in adults with cerebral palsy. American Journal of Physiology-Endocrinology and Metabolism, 303(9), E1085–E1093. https://doi.org/10.1152/ajpendo.00338.2012

Phipps, S., & Roberts, P. (2012). Predicting the Effects of Cerebral Palsy Severity on Self-Care, Mobility, and Social Function. American Journal of Occupational Therapy, 66(4), 422–429. https://doi.org/10.5014/ajot.2012.003921

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Pinto, V. V., Alves, L. A. C., Mendes, F. M., & Ciamponi, A. L. (2016). The nutritional state of children and adolescents with cerebral palsy is associated with oral motor dysfunction and social conditions: a cross sectional study. BMC Neurology, 16(1), 55. https://doi.org/10.1186/s12883-016-0573-8

Poulos, A. E., Balandin, S., Llewellyn, G., & Dew, A. H. (2006). Women With Cerebral Palsy and Breast Cancer Screening by Mammography. Archives of Physical Medicine and Rehabilitation, 87(2), 304–307. https://doi.org/10.1016/j.apmr.2005.09.020

PRIEGO QUESADA, J. I., LUCAS-CUEVAS, A. G., LLANA-BELLOCH, S., & PÉREZ-SORIANO, P. (2014). Effects of exercise in people with cerebral palsy. A review.  Journal of Physical Education & Sport, 14(1), 36–41. Retrieved from http://web.b.ebscohost.com ... (url shortened - click link to view full URL)

Pruitt, D. W., & Tsai, T. (2009). Common medical comorbidities associated with cerebral palsy. Physical Medicine and Rehabilitation Clinics of North America, 20(3), 453–467. https://doi.org/10.1016/j.pmr.2009.06.002

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ROEBROECK, M. E., JAHNSEN, R., CARONA, C., KENT, R. M., & CHAMBERLAIN, M. A. (2009). Adult outcomes and lifespan issues for people with childhood-onset physical disability. Developmental Medicine & Child Neurology, 51(8), 670–678. https://doi.org/10.1136/bmj.326.7396.970

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Sanders, K. Y. (2006). Overprotection and lowered expectations of persons with disabilities: The unforeseen consequences. Work, 27(2), 181–188. Retrieved from https://content.iospress.com/articles/work/wor00561

Sandström, K. (2007). The lived body — experiences from adults with cerebral palsy. Clinical Rehabilitation, 21(5), 432–441. https://doi.org/10.1177/0269215507073489.

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